VETERANS STUDY
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First hand accounts of Blastocystis infection
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All accounts are used with the permission of those submitting the information.
Here are links to studies showing what this does to animals - contact me for photos of animals from one study if you are interested.
The most recent research suggests symptoms vary with host genetics and age, with people over 35 experiencing worse symptoms. The same organism can be cleared by one person, but cause severe illness in the next person. This is true of most infectious diseases.
Audio Testimony
Carine in California
(Received October 28, 2009)
My name is Carine. I am calling from California. You
can make this audio available publicly. I have been sick for
seven years with bouts of nausea, diarrhea, weight loss, loose floating
stools, flatulence, abdominal pain, anal itching, headaches, and foggy
head....... View the rest of
Carine's account, or listen to the audio
Chris in CORVALLIS, Oregon
(Received October 28, 2009)
My name is Chris. I am calling from Oregon. You can make
this audio available publicly. My family relocated from Idaho to
Oregon in 2003. In Idaho, I have never heard of IBS or a food
allergy. When we got to Oregon, it seemed like all the families
had chronic GI illness. My kids friends kept throwing up in the
car. I didn't think anything of it until 2003, when three of us
developed chronic GI illness after eating at a Thai restaurant in
Wilsonville....View
the rest of Chris's account, or listen to the audio
Liona from Connecticut
(Received October 30, 2009)
It's effected me and some of my family and friends. Hopefully
the NIH and the CDC will get something happening there.
View all of Liona's account or listen
to the audio.
S from Europe
Received January 16, 2010
I used to be a very physically active 49 year old (regularly biking up
and down alpine passes where we live), but this has been physically
debilitating.
Michelle from California
(Received November 6, 2009)
My husband became ill with Blastocystis in July of 2007. It is now
November 2009. And he has spent the last 2 years in and out of
hospitals, wracking up numerous numerous medical bills,
View all of Michelle's account or listen
to the audio.
Lisa from Vancouver
(Received November 6, 2009)
This parasite has caused chronic fatigue syndrome and has drastically
effected my life. My symptoms are chronic fatigue, tired legs,
cold legs, dizziness, hypoglycemia, reduced immunity to infection,
palpitations, exhaustion, panic attacks, sinus infections, IBS symptoms,
weight loss, and food sensitivities. View all of
Lisa's account or listen
to the audio.
Written Testimony
Severe fatigue
The fatigue is sometimes overwhelming
and the dry eye irritation keeps me off the computer......Read
more
Sick for years
I have been infected
with blastocystis and I was treated in 2008. I have just been tested
again because of reoccuring symptoms, it turned out positive. I am now
having other symptoms and problems. I now think that these parasites
have spread to other parts of my organs and I am really concerned. Not
sure where to go from here. I am in search of an answer to help me heal.
Found successful treatment (from Australia)
(Received December28, 2009 11:25 PM)
I had B Hominis infection
really badly but now (finally!) am rid of it. I took the second-line
drugs for resistant B. Hominis infection (being Secnidazole; Diloxinide
Furoate; and Septrin DS) and this combo rid me of B Hominis infection
after the 1st line triple drug therapy had not worked for me (Nitazoxinide;
Secnidazole and Furazolidone )
Uncontrolled Weight Loss in Portland, Oregon
(Received January 8, 2010 1:57 PM)
We continue to lose weight, have low energy and suffer other symptoms of
a compromised immune system read
more
J in California
Green Juice
“4 years ago I went to buy a green juice….my life has been hell: I
can not sleep because of a heat feeling on my shoulder area and all over
my body, colitis, leaky gut, blooded, feeling suicidal, restless, fog
like feeling, etc. Before this I had a normal life worked out 4 to five
times a week but now I'm miserable.
–J in California
Treating Blastocystis with anti-malarial drugs"I contracted Blastocystis in Sudan in early 2006. My story is sadly very familiar to so many others on this site. This disease has had a considerable impact on my life, although I feel fortunate to have managed to pursue my career, and start a family. I'm contacting you because none of the treatments I've been tried have helped (I've tried all the main treatment combinations, both conventional and natural) except for my most recent round of medication.....Read More"
Received 3/28/2009
3.5 months of chronic diarrhea, skin eruptions and
nothing fazes it. Tell me there's *something* that can at least
end the D!
B on East Coast
July 2007
I have spent my married reproductive years with this beast and since I
can not eat did not think I could make a healthy baby. But as 40 is
here I am not willing to give up on the idea of a child altogether
because this parasite stole the option for us to try and have a baby.
B in California
Widespread Pain
“Our main symptoms have been complete loss of appetite, feeling very
unwell (stomach feels full and heavy) after eating anything, subsequent
weight loss and low levels of energy, fatigued etc, some nausea. (no
real pain, very little diarrhea, no vomiting)…. Chronic fatigue,
confusion, breathing difficulty, joint pain, mushy stools, abdominal
pain (especially after eating a high carb meal), rash in the groin
creases that won't respond to conventional treatments and depression.
Three or 4 years ago I was also having spells of very low pulse (less
than 40 bpm) and several near fainting spells that could not be
explained by the doctors at the hospitals. Heart palpitations. Chest
pain, Joint pain, particularly elbows and shoulders, Bilateral arm
weakness and numbness – particularly the biceps. Changed from
principally constipation to principally diarrhea. Upper abdominal pain
as well, Extreme fatigue, inability to get up for longer periods that 10
minutes. Sweats Tremor/ shaking hands. I did not realized the new rash
on my torso was associated.”
- B in California
H in Corvallis, Oregon
My family and I have lived in Corvallis for six years now We
have two children. My husband has had fatigue, abdominal cramping and
food sensitivities for the last four years, which he attributed to his
hiatal hernia. But this winter, our daughter began complaining of
abdominal discomfort. CBC, Celiac panel, H. Pylori test, etc. all came
back normal. Her pediatrician diagnosed her with "functional abdominal
pain" (aka "I don't really know what is causing her pain"). I insisted
on more tests. They did a stool test and she came back positive for
Blastocystis Hominis. I insisted that our whole family be tested and
both my husband and I tested positive (I am asymptomatic). Our son's
test came back negative...but as I type, he is having diarrhea.
I feel that this is something more doctors need to be aware of! I so
wish there was more information on BH/more statistics. We are on well
water. We contacted Pacific Analytical Lab to see about testing our
water for BH. Apparently it's very difficult to actually detect
parasites in water and the test is very, very expensive. They
recommended testing for Coliform and E. coli as a way to see if bacteria
was making its way into our well. The tests came back negative.
L in Arizona
Multiple Family Members
“My daughter and I have since developed the same symptoms (and I have
tested positive as I have stated) for about 4 weeks. We developed
symptoms the same day experiencing shortness of breath and wheezing and
chest pain - approximately 10 weeks ago. At the same time or shortly
thereafter began having diffuse abdominal discomfort - tender to touch.
Began to feel jetlagged and was waking up even earlier than usual with
extreme waves of nausea that sometimes led to vomiting. Stomach gurgled
constantly. Nausea lasts all day, became anorexic, lost weight at an
alarming rate - to present date have lost 14 pounds. Began to have
headaches and sore muscles in the neck area. Upon waking explosive
diarrhea x 3-4 and during the day soft stool a couple of times.
Overwhelming fatigue - worse than I have ever experienced. I am not able
to function at all, general malaise and fall asleep in the middle of a
sentence"
– L in Arizona
J in Oregon
Multiple Visits to the Emergency Room
“Twice in the past 3 months I have gone to urgent care or the
ER for abdominal pain and was diagnosed with the sort of mortifying
diagnosis of Constipation" The last GI MD ordered an MRI of abdomen and
pelvis and all is well inside, thank heavens. And then, as I told you,
my stool samples were positive for Blastocystis”
-J in Oregon age 53
Chris in EUGENE, Oregon (not same Chris as the one
in Corvallis)
Moving to Eugene, Oregon, getting sick, losing a job
"My story begins in August of 2005. My wife and I decided to move to Eugene
for a faster paced life. The mistake I made was to begin drinking the water. I
thought that because of the rains Oregon receives, it would have clean pure
drinking water. I soon learned otherwise.
The first symptom I noticed was diarrhea. It was different from what I had
experienced to that point. I would eat what I thought to be a regular meal. But
no matter what I ate, I would have diarrhea, yellow watery, diarrhea. By
coincidence my wife began having diarrhea. We tried eating yogurt and rye crisp
crackers to get regular. The diarrhea continued
(click here to read Chris' online book,
"Blastocystis: A Digestive Emergency) "
More patients accounts on the web site, "BadBugs.org"